PROMIS Life Satisfaction 8b - Parent Proxy in Environmental influences on Child Health Outcomes (ECHO)-wide Cohort - 2nd Release

PROMIS Life Satisfaction 8b - Parent Proxy
Study Description
The National Institutes of Health launched the Environmental influences on Child Health Outcomes (ECHO) initiative in September 2016. The Program focuses on five pediatric outcome areas: obesity, neurodevelopment, upper and lower airways, pre-, peri-, and postnatal outcomes, and positive health. The ECHO-wide Cohort Study, presented here, incorporates longitudinal data on a growing 30,000 pregnancies and 50,000 children from 69 pediatric cohorts to investigate how exposure to environmental factors — including physical, chemical, biological, social, behavioral, natural, and built environments — impact child health and development. By bringing data together into one large ECHO-wide Cohort, scientists can address questions that no single cohort, or a few working together, can answer. Most of the cohorts existed prior to ECHO, bringing a wealth of extant data for compilation and harmonization, in addition to standardized collection of new essential and recommended data elements. As of August 31, 2022, 32,311 pregnancies (among 21,801 pregnant persons) and 30,904 children agreed to participate in new ECHO-wide Cohort data collection. Longitudinal data are collected for pregnancies and life stages of the child to 21 years of age.

患者报告结局测量信息系统（Patient-Reported Outcomes Measurement Information System, PROMIS）生活满意度8项量表-家长代理报告版
研究说明
美国国立卫生研究院（National Institutes of Health, NIH）于2016年9月启动了儿童健康结局的环境影响（Environmental influences on Child Health Outcomes, ECHO）研究计划。该计划聚焦五大儿科结局领域：肥胖、神经发育、上下呼吸道疾病、围产期（产前、产时及产后）结局与积极健康发展。本次展示的全ECHO队列研究整合了来自69个儿科研究队列的纵向随访数据，覆盖近3万例妊娠与5万名儿童，旨在探究物理、化学、生物、社会、行为、自然及建成环境等各类环境因素暴露对儿童健康与发育的影响。通过将多中心数据整合为大型全ECHO队列，科研人员可解答单个或少数联合队列无法解决的科学问题。多数研究队列在ECHO计划启动前已建立，除标准化采集新的必要与推荐数据要素外，还可获取大量可用于整合与统一校准的既往数据。截至2022年8月31日，共有21801名妊娠个体参与的32311例妊娠，以及30904名儿童同意参与全ECHO队列的新增数据采集。研究将采集妊娠全程及儿童至21岁各生命阶段的纵向随访数据。