Assessment of patient satisfaction and preferences with an intensive care diary

ABSTRACT Objectives: To evaluate the satisfaction of patients admitted to the intensive care unit using a diary and analyze possible points for improving this instrument. Methods: This was an observational, retrospective study, conducted between March 2014 and July 2017, in a multidisciplinary intensive care unit of a district hospital. The diary was implemented in patients sedated for 3 or more days. Three months after discharge, their satisfaction was assessed using a questionnaire. A patient who agreed with the 5 statements assessing the diary's help in clarifying the intensive care unit stay, in filling memory gaps, in recovery, in reassurance, and in the recommendation of this intervention was defined as satisfied. Results: A total of 110 patients were included, of whom 55 answered the questionnaire. Of these, 36 (65.5%) were classified as satisfied. Each item had a positive response in more than 74% of cases. A total of 60% of the participants suggested increasing the number of photographs. No significant differences were found in the subgroup analysis (age, sex, duration of sedation and ventilation, length of diary keeping, severity on admission, or delirium, depression, or anxiety in the intensive care unit). Conclusions: Most patients were satisfied with the diary but suggested an increase in the number of photographs.

摘要
研究目的：评估使用重症监护日记的重症监护病房（Intensive Care Unit, ICU）住院患者的满意度，并分析该工具的潜在优化方向。
研究方法：本研究为回顾性观察性研究，于2014年3月至2017年7月间在某地区医院的多学科重症监护病房开展。研究将该重症监护日记应用于接受镇静治疗时长≥3天的患者，于患者出院3个月后通过调查问卷评估其满意度。若患者对以下5项陈述均表示认同，则将其判定为满意患者：重症监护日记有助于明晰ICU住院经历、填补记忆空白、促进康复、提供心理慰藉，以及推荐该干预措施。
研究结果：本研究共纳入110例患者，其中55例完成了问卷回访。在完成回访的患者中，36例（65.5%）被归类为满意患者。所有调研条目均获得超过74%的正向应答。另有60%的参与者建议增加照片数量。亚组分析（按年龄、性别、镇静与通气时长、留存日记时长、入院病情严重程度，以及重症监护期间的谵妄、抑郁或焦虑症状分组）未发现显著统计学差异。
研究结论：绝大多数患者对该重症监护日记表示满意，但均提出了增加照片数量的优化建议。