The impact of stroke on the quality of life of children and adolescents

ABSTRACT The aim of this study was to evaluate the quality of life (QoL) of children/adolescents with a diagnosis of stroke (CVA) in the eyes of the person responsible and the children / adolescents themselves compared to a control group. 78 subjects were divided into: Group of children / adolescents who had a history of stroke (GAVC, n = 39) and a group of healthy children/adolescents as Control (CG, n = 39) matched by gender and age. A semi-structured interview was used to describe the sociodemographic aspects and the Pediatric Quality of Life Inventory (PedsQLTM 4.0) to evaluate the QoL of the subjects in their development. The median age of the diagnosis of stroke was 7 months, with the majority presenting ischemic stroke (71.8%) and hemiparesis.According to those responsible for the GAVC, the Functional Capacity of their children was significantly different, presenting inferiority in relation to the CG. Also, for those in charge, the father’s educational variable maintained a significant positive effect on the emotional aspects of the child, and the variable age of the child /adolescent and stroke time> 29 days of life had a negative effect on the school aspects. As for the children / adolescents, the variable age that entered school and gender had a significant negative effect on the outcome of school aspects in relation to the CG. We conclude that the view of those responsible differs from the child/adolescent’s view of their functional capacity; the father’s schooling positively influenced the emotional aspects of the child and the children feel a loss in school performance, especially the boys.

摘要 本研究旨在从监护人及儿童/青少年自身的视角，评估确诊脑卒中（Cerebrovascular Accident, CVA）的儿童/青少年的生活质量（Quality of Life, QoL），并与对照组进行对比。本研究共纳入78名受试者，按性别与年龄匹配原则分为两组：有卒中史的儿童/青少年组（Group of Adolescents/Children with Stroke History, GAVC，n=39），以及健康儿童/青少年对照组（Control Group, CG，n=39）。研究采用半结构化访谈收集受试者的社会人口学特征，并使用儿科生活质量量表（Pediatric Quality of Life Inventory, PedsQLTM 4.0）评估受试者发育阶段的生活质量。本研究中受试者的卒中确诊中位年龄为7个月，多数患儿为缺血性卒中（71.8%）且伴随偏瘫。根据GAVC组监护人的反馈，其子女的功能能力与对照组存在显著差异，表现显著劣于对照组。此外，监护人报告显示，父亲的受教育程度因素对儿童的情绪维度存在显著正向影响；而儿童/青少年的年龄及卒中发生于出生后29天以上这两个因素，则对学业维度存在负向影响。针对儿童/青少年自身的评估结果显示，相较于对照组，入学年龄与性别对学业维度的评估结果存在显著负向影响。本研究得出结论：监护人对患儿功能能力的认知与患儿自身的认知存在差异；父亲的受教育程度对儿童情绪维度存在正向影响，且患儿自身感知到学业表现受损，这一情况在男性患儿中尤为显著。