Aging Concerns, Challenges, and Everyday Solution Strategies (ACCESS) Phase 2

This study was conducted as part of the Rehabilitation Engineering Research Center on Technologies to Support Aging among People with Long-Term Disabilities (RERC TechSAge). The Aging Concerns, Challenges, and Everyday Solutions (ACCESS) project, a mixed-methods investigation into the daily challenges faced by individuals aging with long-term disabilities. Participants completed questionnaires and a structured interview exploring the nature and distribution of challenges with activities at home and in the community, as well as their response strategies to manage these challenges. ACCESS data are being used to develop a taxonomy of everyday support needs and provide guidance for the design of supportive technologies for this understudied population. The current dataset is for phase 2 of the ACCESS study (N=180) which focused on three target populations: (1) individuals who are late-deafened and use English as their primary language; (2) individuals with multiple sclerosis (MS); and (3) individuals with vision loss (due to macular degeneration or glaucoma). There were 60 individuals in each group.

本研究系针对长期残疾人群衰老支持技术的康复工程研究中心（Rehabilitation Engineering Research Center on Technologies to Support Aging among People with Long-Term Disabilities，缩写为RERC TechSAge）的相关研究工作。衰老关切、挑战与日常解决方案（Aging Concerns, Challenges, and Everyday Solutions，简称ACCESS）项目是一项针对长期残疾人群衰老后日常困境的混合方法研究。参与者完成了问卷调研与结构化访谈，内容涵盖居家与社区活动中困境的本质与分布特征，以及应对此类困境的策略。ACCESS项目数据将被用于构建日常支持需求分类体系，并为这一尚未得到充分研究的人群的辅助技术设计提供指导依据。本数据集对应ACCESS研究的第二阶段（样本量N=180），该阶段聚焦三类目标人群：（1）迟发性耳聋且以英语为主要语言的个体；（2）多发性硬化（Multiple Sclerosis，简称MS）患者；（3）因黄斑变性或青光眼导致视力受损的个体。每组各包含60名受试者。