A mapping review of good practices of participatory research for an impactful collaboration in disabilities studies

Participatory research is particularly relevant to understanding the challenges faced by people with disabilities (PWDs), as it actively involves them as partners. This collaboration enables research methodologies to be better adapted to their lived realities, producing more relevant and applicable results. By involving PWDs directly, participatory research helps reduce systemic barriers, promotes inclusion and leads to a deeper understanding and more thoughtful consideration of their specific needs within the research process. Yet, studies have identified hurdles associated with this approach, prompting questions about how organizations portray PWDs, the dynamics among research stakeholders, the distribution of decision-making power, and the actual impact of research on its partners. This study aims to identify the factors that influence the process and results of participatory research in the field of disability studies. We conducted a mapping review following the PRISMA-ScR guidelines, and analyzed the results according to the input-throughput-outcomes Bergen model. 42 studies were included in the analysis. We identified partners skills and training, power sharing and benefits of active involvement as facilitators of participatory research. On the other hand, contextual challenges, and lack of guidance are reported as obstacles. This study provides insight into the various facilitators and barriers to participatory research. It also explores how different research processes interact to produce positive, valid and rigorous results. In rehabilitation, including people with disabilities in research has been identified as crucial for fostering inclusive projects and developing tailored solutions to specific needs.Several factors interact to facilitate or hinder participatory research approaches in rehabilitation studies.Participatory approaches in disability studies are facilitated by the diversity of skills and abilities that different partners bring to the collaboration.Training, preparation and mentoring enable partners to be better prepared for research and to work together more effectively. In rehabilitation, including people with disabilities in research has been identified as crucial for fostering inclusive projects and developing tailored solutions to specific needs. Several factors interact to facilitate or hinder participatory research approaches in rehabilitation studies. Participatory approaches in disability studies are facilitated by the diversity of skills and abilities that different partners bring to the collaboration. Training, preparation and mentoring enable partners to be better prepared for research and to work together more effectively.

参与式研究（Participatory Research）在探析残疾人（People with Disabilities，简称PWDs）所遭遇的各类困境时具备独特价值，因其可主动吸纳PWDs作为合作伙伴深度参与研究过程。此类协作可使研究方法更好适配其真实生活处境，产出更具针对性与实用性的研究成果。通过直接吸纳PWDs参与，参与式研究有助于破除系统性障碍、推动包容发展，并能在研究流程中更深入地理解与审慎考量PWDs的特定需求。然而，相关研究已指出该方法存在诸多障碍，由此引发一系列疑问：各类组织如何呈现PWDs、研究利益相关者间的互动关系如何、决策权力如何分配，以及研究对其合作伙伴的实际影响为何。本研究旨在探明残疾研究领域中影响参与式研究进程与成果的各类因素。本研究遵循PRISMA范围综述扩展指南（PRISMA-ScR）开展范围综述，并依据输入-过程-输出卑尔根模型（input-throughput-outcomes Bergen model）对研究结果进行分析。本次分析共纳入42项相关研究。本研究发现，合作方的技能与培训情况、权力共享机制以及主动参与所带来的收益，均为参与式研究的促进因素。而情境层面的挑战与指导支持的缺失，则被视为该研究方法的阻碍因素。本研究揭示了参与式研究面临的各类促进因素与阻碍因素，同时探讨了不同研究流程如何相互作用，以产出积极、可信且严谨的研究成果。在康复领域，吸纳残疾人参与研究已被证实对推动包容性项目开发、针对特定需求定制解决方案至关重要。诸多因素会相互作用，对参与式研究方法起到促进或阻碍作用。残疾研究领域的参与式研究，可因不同合作伙伴所带来的技能与能力多样性而得到推进。培训、筹备与指导帮扶可使合作方更好地适配研究工作，更高效地开展协同研究。在康复领域，吸纳残疾人参与研究已被证实对推动包容性项目开发、针对特定需求定制解决方案至关重要。诸多因素会相互作用，对参与式研究方法起到促进或阻碍作用。残疾研究领域的参与式研究，可因不同合作伙伴所带来的技能与能力多样性而得到推进。培训、筹备与指导帮扶可使合作方更好地适配研究工作，更高效地开展协同研究。