Community ratings of the web resource launched.

Recovery from acute exacerbations of chronic obstructive pulmonary disease (AECOPD) is often sub-optimal. Ensuring patients receive high quality, accessible information regarding their condition and priorities of care is challenging during this time. This project aimed to develop and evaluate the utility and usability of a new, co-designed web resource. Mixed methods co-design principles were employed over a 3-phased study. In Phase 1, content analysis was undertaken of qualitative interviews with 8 patients, 2 carers and 9 multidisciplinary healthcare professionals regarding their experiences during and after AECOPD. Results informed a two-round web-based Delphi survey involving 20 international expert clinician-researchers in Phase 2. Consensus items informed web resource construction in Phase 3, with alpha testing evaluations undertaken by Phase 1 stakeholder participants and beta testing evaluations undertaken of the revised web resource following real-world tablet-device pilot implementation by inpatients during and after AECOPD and their treating therapists. The final resource was presented via webinar to community clinicians and final feedback was captured via online survey. 53/58 items reached consensus during the Delphi survey. Tablet-administered education was feasible. Surveys were completed by 25 inpatients. 80% found the resource useful, 72% reported an increased willingness to participate in pulmonary rehabilitation and 28% indicated they gained new insights or motivation for behavioural change to improve disease management. Follow-up patient evaluations were limited by loss to follow-up (14/25; 56%). Therapists indicated high levels of satisfaction with the resource and perceived improved clinical work efficiencies. Of 21 community clinicians, the median response was ‘strongly agree’ that they ‘would recommend this web resource to patients and/or their carers’. Lung Flare Care is a new web-based educational resource that can aid the delivery of high quality education for best care for people with AECOPD. Further research is needed regarding best implementation recommendations and impact of this novel web resource.

慢性阻塞性肺疾病急性加重（acute exacerbations of chronic obstructive pulmonary disease, AECOPD）患者的康复效果通常未达最优。在此阶段，确保患者获得关于自身病情及照护优先级的高质量、可及性信息颇具挑战。本研究旨在开发并评估一款全新协作式设计网络资源的实用性与可用性。研究采用混合方法协作设计原则，分为三阶段开展。第一阶段，研究团队对8名患者、2名照护者及9名多学科医疗专业人员开展质性访谈，并对受试者在AECOPD发作期间及发作后的经历开展内容分析。研究结果为第二阶段的两轮网络德尔菲调查（Delphi survey）提供了依据，该调查共纳入20名国际临床研究者专家。第二阶段达成共识的条目为第三阶段的网络资源构建提供了支撑。随后，第一阶段的利益相关者参与者开展了α测试（alpha testing）评估；在住院患者于AECOPD发作期间及发作后，联合其接诊治疗师开展真实世界平板设备试点应用后，研究团队对修订后的网络资源开展了β测试（beta testing）评估。最终研发的网络资源通过网络研讨会（webinar）向社区临床医师进行展示，并通过线上问卷调查（online survey）收集最终反馈意见。本次德尔菲调查中，58项条目共有53项达成共识。平板端开展的患者宣教具备临床可行性。共有25名住院患者完成了调研问卷：其中80%的患者认为该资源具有实用价值，72%的患者表示参与肺康复（pulmonary rehabilitation）的意愿有所提升，28%的患者称其从中获得了改善疾病管理的行为改变新认知或动力。后续患者评估受限于失访情况：25名调研对象中共14人失访，失访率达56%。参与调研的治疗师对该资源表示高度满意，并认为其可提升临床工作效率。在21名社区临床医师中，中位反馈结果为"非常同意"，并表示"会将该网络资源推荐给患者及/或其照护者"。Lung Flare Care是一款全新的网络式教育资源，可助力为AECOPD患者提供高质量的最优照护宣教。未来仍需开展进一步研究，以明确该新型网络资源的最佳实施建议及实际临床影响。