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Our Future Health Linked Health Records Data

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Our Future Health is a prospective, observational cohort study of the general adult population of the United Kingdom (UK). The programme aims to support a wide range of observational health research. We gather personal, health and lifestyle information from each participant through a self-completed baseline health questionnaire and at an in-person clinic visit. We will further link this data to other health-related data sets. Participants have also given consent for us to recontact them, for example to invite them to take part in further or repeat data collections, or other embedded studies such as clinical trials. The Our Future Health programme is currently open to all adults (18 years and older) living in the UK. In July 2022, we started recruiting participants in England and will continue to expand across the rest of the UK. The data we’ve gathered so far (December 2025) includes linked NHS England clinical data on 1,665,668 participants - Additional linked datasets are available: - ‘Baseline Health Questionnaire Data’ which contains baseline demographic information and responses to our health questionnaire from 1,929,752 participants. - ‘Genotype Data’ which includes genotype array data on 707,522 variants from a subset of 775,118 participants - - Imputed Genotype Dataset which include data on 159,587,100 variants and 550,000 participants. - Clinical Measurements Data which contains clinical data from 1,456,410 participants. The data is stored in the Our Future Health Trusted Research Environment. We de-identify all participant data we gather before it’s available for use. All researchers will need to become registered researchers at Our Future Health and have an approved research study before they're given access to the data. We aim to collect a variety of data types from up to 5 million adult participants from across the UK. We hope to make more data types available on a quarterly basis.

「我们的未来健康」(Our Future Health)是一项针对英国普通成年人群的前瞻性观察队列研究。本项目旨在支撑多领域观察性健康研究工作。研究团队通过基线健康问卷自评与线下门诊访视,采集每位参与者的个人信息、健康状况与生活方式数据,并将进一步将该类数据与其他健康相关数据集进行关联整合。参与者已授权研究团队后续联系,例如邀请其参与后续或重复数据采集,或参与临床试验等内嵌式研究项目。 「我们的未来健康」项目目前面向英国境内所有年满18周岁的成年人群开放。2022年7月,项目在英格兰正式启动招募工作,并将逐步向英国其余地区拓展覆盖范围。截至2025年12月,研究团队已采集的数据包含1,665,668名参与者的关联英格兰国民保健署(NHS England)临床数据。 此外,项目还提供以下关联数据集: 1. 《基线健康问卷数据》:涵盖1,929,752名参与者的基线人口统计学信息与健康问卷应答结果; 2. 《基因型数据》:包含775,118名参与者的707,522个基因位点的芯片检测数据; 3. 填充基因型数据集:涵盖550,000名参与者的159,587,100个基因位点数据; 4. 临床测量数据:包含1,456,410名参与者的临床检测数据。 所有采集的参与者数据均会在开放使用前完成去标识化处理,存储于「我们的未来健康」可信研究环境(Trusted Research Environment)中。所有研究人员需先在「我们的未来健康」平台完成注册,并获批研究项目,方可获取数据访问权限。 本项目计划从英国全境至多500万名成年参与者处采集多类数据,并计划按季度逐步开放更多数据类型。
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