Descriptive data for the pBT-child dyads.

Autism spectrum disorder (ASD) is a condition with growing prevalence that results in significant healthcare spending, reduced parent income, high levels of family stress, and decreased quality of life (QoL). QoL is a measure for assessing overall wellness, and in the context of ASD is related to parent self-efficacy. Validated treatments, of which applied behavior analysis (ABA) is the gold standard, can mitigate some of the consequences that may be detrimental to parental QoL. We examined changes in parental QoL across multiple domains within three parent-child dyads in the context of a parent-led ABA model where the treatment was delivered by the parent. We hypothesized that parental QoL would be increased concurrently with ABA treatment lowering the frequency of interfering behaviors, which contribute to parental stress and limited self-efficacy. QoL components improved between the first and follow-up evaluations, though not all QoL component score changes achieved clinical significance. This study demonstrates a correlation between parental QoL and clinical treatment progress; with further validation, QoL assessment may serve as a tool to guide individualized treatment approaches that improve family outcomes.自闭症谱系障碍（Autism Spectrum Disorder, ASD）是一种患病率持续攀升的病症，会造成高额医疗开支、家长收入减少、家庭压力居高不下以及生活质量（Quality of Life, QoL）下降。生活质量是评估整体健康状况的指标，在自闭症谱系障碍的语境下，其与家长的自我效能感相关。经验证的治疗手段中，应用行为分析（Applied Behavior Analysis, ABA）是金标准，它能够缓解部分可能损害家长生活质量的不良后果。本研究针对由家长主导的应用行为分析治疗模型下的3组亲子对，考察了家长在多个领域的生活质量变化，该治疗模式由家长亲自执行治疗操作。我们提出假设：随着应用行为分析治疗降低干扰性行为的发生频率，这类行为会加剧家长压力并削弱其自我效能感，家长的生活质量会得到提升。在首次评估与随访评估之间，家长生活质量的各维度均有所改善，但并非所有维度的评分变化均达到临床显著性水平。本研究证实了家长生活质量与临床治疗进展之间存在相关性；若能进一步验证，生活质量评估可作为指导个体化治疗方案的工具，从而改善家庭结局。