Data from: Effectiveness of Patient Training in Inflammatory Bowel Disease via Instagram: A Randomized Controlled Trial

Background: Disease related knowledge acts as success factor in chronical conditions to improve adherence and outcomes. There are many programs to improve disease related knowledge, in recent years especially digital or web-based approaches. Some of these approaches still lack in integration into patients' daily lives.

Objective: To assess if patient training via Instagram is an effective way to increase disease related knowledge in patients with inflammatory bowel diseases.

Methods: A randomized controlled trial was conducted. The intervention group received access to an Instagram account for 5 weeks that provided educational content in the story-function of Instagram. Control group did not receive any intervention. The level of disease related knowledge was assessed by IBD-KNOW before and after the intervention.

Results: n=83 participants were randomized to control and treatment group. n=49 participants (intervention: 25, control: 24) filled out both questionnaires. Disease related knowledge before the intervention did not statistically significant differ between groups. After the intervention, disease related knowledge was 3.59 points higher in the intervention group compared to control (p<.001, 95% CI [1.98, 5.19]).

Conclusion: Patient education via Instagram could be regarded as an effective way of educating patients with inflammatory bowel disease.

背景：疾病相关知识是慢性疾病管理中提升患者治疗依从性、改善临床结局的关键影响因素。当前已有多款用于提升疾病相关知识的教育项目，近年来尤以数字化或基于网页的教育方案为主流，但此类方案大多仍难以融入患者的日常生活场景。

研究目标：评估通过Instagram平台开展患者教育，是否可有效提升炎症性肠病（Inflammatory Bowel Diseases, IBD）患者的疾病相关知识水平。

方法：本研究采用随机对照试验（Randomized Controlled Trial, RCT）设计。干预组受试者可访问一个运营周期为5周的Instagram账号，该账号通过Instagram快拍功能发布疾病教育内容；对照组则不接受任何干预措施。本研究采用IBD-KNOW量表，分别于干预前后对受试者的疾病相关知识水平进行评估。

结果：共计83名受试者被随机分配至对照组与干预组，最终有49名受试者完成了前后两次问卷调查（干预组25名，对照组24名）。干预前，两组受试者的疾病相关知识水平无统计学差异。干预结束后，干预组的疾病相关知识得分较对照组高出3.59分（p<0.001，95%置信区间（Confidence Interval, CI）[1.98, 5.19]）。

结论：通过Instagram平台开展患者教育，可作为提升炎症性肠病患者疾病知识水平的有效干预手段。