Development of Standards for Online Repositories

The
report reviews existing standards, best practices, and governance requirements
needed to establish and run trusted repositories that house health research
data. The objectives of the report are to identify existing standards related
to data repositories; to assess the standards that are currently in place in
selected repositories that house health data; to conduct a gap analysis of
governance standards used in existing repositories.

Updated to version 3 on 11th May 2018:
The first version of Appendix 1 had the word ‘confidential’ on the cover page which had been left in in error during the editing process. This has now been taken out.
Updated to version 2 on 8th May 2018: The document
was previously called ‘Development of International Standards for Online Repositories’ but
has been changed to ‘Development of Standards for Online Repositories’ as it
better reflects the document and its scope. The first version of the document had
the word ‘confidential’ on the cover page which had been left in in error
during the editing process. This has now been taken out. Finally, Appendix 1
has been added as it is referred to in the document but was not available.

本报告综述了建立并运营存放健康研究数据的可信存储库所需的现行标准、最佳实践与治理要求。本报告的目标如下：一是识别与数据存储库相关的现行标准；二是评估选定健康数据存储库当前采用的标准；三是开展现有存储库所使用治理标准的差距分析。

2018年5月11日更新至第3版：
附录1（Appendix 1）的首版封面页在编辑流程中误保留了“保密”字样，现已移除。

2018年5月8日更新至第2版：
本文件原名为《在线存储库国际标准制定》，现更改为《在线存储库标准制定》，以更贴合文件内容与范围。首版文件的封面页曾在编辑流程中误保留“保密”字样，现已移除。此外，由于文件中提及附录1但此前未提供，故新增附录1。