Table_1_Conceptualization, use, and outcomes associated with compassion in the care of youth with childhood-onset disabilities: a scoping review.docx

IntroductionTo examine the scope of existing literature on the conceptualization, use, and outcomes associated with compassion in the care of youth with childhood-onset disabilities.
MethodsA protocol was developed based on the Joanna Briggs Institute (JBI) scoping review method. MEDLINE, EMBASE, PsycINFO, Cochrane Central Register of Controlled Trials, and EBSCOhost CINAHL, were searched.
ResultsEight studies were selected for inclusion; four used quantitative methodology, and four used qualitative methods. Compassion was not defined a priori or a posteriori in any of the included studies. The concept of self-compassion was explicitly defined only for parents of youth with childhood-onset disabilities in three studies a priori. The most reported outcome measure was self-compassion in parents of youth with childhood-onset disabilities. Self-compassion among parents was associated with greater quality of life and resiliency and lower stress, depression, shame and guilt.
DiscussionThere is limited evidence on the conceptualization, use, and outcomes associated with compassion among youth with childhood-onset disabilities. Self-compassion may be an effective internal coping process among parents of youth with childhood-onset disabilities. Further research is required to understand the meaning of compassion to youth with childhood-onset disabilities, their parents and caregivers.
Systematic review registrationhttps://doi.org/10.17605/OSF.IO/2GRB4.

引言 本研究旨在系统梳理现有关于儿童起病残疾青少年照护中慈悲（compassion）的概念界定、应用实践及相关结局的文献范围。
研究方法 本研究基于乔安娜·布里格斯研究所（Joanna Briggs Institute, JBI）的范围综述方法制定研究方案。共检索了MEDLINE、EMBASE、PsycINFO、考克兰对照试验中心注册库（Cochrane Central Register of Controlled Trials）以及EBSCOhost CINAHL数据库。
研究结果 最终纳入8项相关研究，其中4项采用定量研究方法，4项采用定性研究方法。所有纳入研究均未对慈悲进行先验或后验性界定。仅3项研究针对儿童起病残疾青少年的父母，对自我慈悲（self-compassion）进行了明确的先验定义。本研究中最常被报道的结局指标为儿童起病残疾青少年父母的自我慈悲水平。分析结果显示，青少年父母的自我慈悲水平与其更高的生活质量、心理韧性以及更低的压力、抑郁、羞耻感和内疚感显著相关。
讨论 目前针对儿童起病残疾青少年群体的慈悲概念界定、应用及相关结局的研究证据较为匮乏。自我慈悲或可成为儿童起病残疾青少年父母的有效内在应对机制。未来仍需开展进一步研究，以明确慈悲对于儿童起病残疾青少年、其父母及照护者的具体内涵与意义。
系统评价注册：https://doi.org/10.17605/OSF.IO/2GRB4