Body-map storytelling: case study on the living and care of women with HIV

ABSTRACT The objective of the study was to understand the living and health care of women living with HIV/AIDS, identifying potentialities and challenges, understanding the effects on living with HIV/AIDS in the daily lives of these women and the relationships with the health care network in Porto Alegre. The municipality has HIV/AIDS detection rates six times higher than the national rates and in 2019 reached 17.6 cases/1,000 live births. A descriptive exploratory study was carried out, of the case study type, and the production of data used the construction of a narrated body map. Four women with a confirmed diagnosis of HIV/AIDS, linked to to a primary health care in the city of Porto Alegre, Rio Grande do Sul, participated. Body maps and narratives made it possible to discover a universe populated by stigma, prejudice, fears, and insecurities. The production of health care for women living with HIV/Aids requires the participation of different fields of knowledge, a wide and planned performance of professionals, and, therefore, the construction of care itineraries that meet the demands of these people in a humanized and welcoming way, as well as through public policies that strengthen the health care network to face stigma and prejudice.

摘要 本研究旨在了解艾滋病病毒（HIV）/艾滋病（AIDS）感染者女性的生存与医疗照护现状，识别其面临的潜在机遇与挑战，明晰HIV/AIDS感染对这类女性日常生活的影响，以及她们与阿雷格里港（Porto Alegre）医疗照护网络的关联。该市的HIV/AIDS检测率为巴西全国平均水平的六倍，2019年该指标达到每1000例活产17.6例。本研究采用案例研究类别的描述性探索性研究设计，数据采集依托叙述式身体地图（narrated body map）的构建方法。共有4名经确诊感染HIV/AIDS且隶属于巴西南里奥格兰德州阿雷格里港基层医疗卫生机构的女性参与本研究。身体地图与叙事分析揭示了一个充斥着污名、偏见、恐惧与不安的认知世界。为HIV/AIDS感染女性提供医疗照护，需要多学科领域的参与、医护人员广泛且系统化的履职行为，因此需构建以人性化、关怀式方式满足这类人群需求的照护路径；同时还需依托公共政策强化医疗照护网络，以应对污名与偏见问题。