Additional file 1 of EURO-NMD registry: federated FAIR infrastructure, innovative technologies and concepts of a patient-centred registry for rare neuromuscular disorders

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患者中心化医疗数据管理

数据链接：

https://springernature.figshare.com/articles/dataset/Additional_file_1_of_EURO-NMD_registry_federated_FAIR_infrastructure_innovative_technologies_and_concepts_of_a_patient-centred_registry_for_rare_neuromuscular_disorders/25223533/1 数据链接链接失效反馈

官方服务：

资源简介：

Additional file 1: List of Registry Key Process Indicators (KPIs).

提供机构：

Lamy, François; Kirschner, Janbernd; Haberlova, Jana; Mancuso, Michelangelo; Horvath, Rita; de Visser, Marianne; Plançon, Jean-Philippe; Athanasiou, Dimitrios; Toscano, Antonio; Gyenge, Melinda; Sakellariou, Paraskevi; Brusse, Esther; van der Beek, Nadine; Tassoni, Adrian; Kornblum, Cornelia; Paliouras, Georgios; Silani, Vincenzo; Hoeijmakers, Janneke G. J.; Pareyson, Davide; Atalaia, Antonio; Blacas, Laura; Claeys, Kristl G.; Lalout, Nawel; Jacoupy, Maxime; ’t Hoen, Peter A. C.; Reviers, Evy; Paradas, Carmen; Vroom, Elisabeth; Wilkinson, Mark D.; Evangelista, Teresinha; Lochmuller, Hanns; Eng, Catherine; Baker, Suzie-Ann; Thompson, Rachel; D’Angelo, Carla; Bassez, Guillaume; Wandrei, Dagmar; Hamroun, Dalil

创建时间：

2024-02-15

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