CHIME CRF Bayley Behavior Rating Scale (BRS) Dataset in Collaborative Home Infant Monitoring Evaluation

Includes assessments of infant attitude, interest, emotion, energy, activity and response to stimuli Study Description Infants were enrolled into four groups: healthy term, preterm infants <1750g w/o significant morbidity, sibling of SIDS, and babies experiencing apparent life-threatening events. Objectives were to: determine monitor efficacy in identifying episodes endangering the infant's health; determine conditions optimizing use of apnea monitors in high risk infants; correlate physiological markers with the propensity for life-threatening events; and report on maturation of heart and respiratory function in sleeping infants. Data were collected from nightly home recordings (via CHIME Monitor device) and one sleep lab polysomnography (PSG) session (via CHIME Monitor and ALICE3 devices). CRF data include sociodemographic and medical information on mother and infant at entry and from scheduled medical follow-up visits through 1-year of age, weekly phone calls, monitor knowledge and satisfaction scales, periodic assessments with the Bayley II, NCAST, subscales of the Parenting Stress Index, and hospitalizations. Infants; ethnicity and race information is from maternal data本数据集包含婴儿态度、兴趣、情绪、精力、活动水平及对刺激的反应评估。 研究概况 研究对象分为四组：健康足月儿、出生体重<1750g且无显著并发症的早产儿、婴儿猝死综合征（Sudden Infant Death Syndrome, SIDS）患儿的同胞兄弟姐妹，以及曾出现疑似威胁生命事件的婴儿。本研究目标如下：明确监护设备在识别危及婴儿健康事件中的效能；确定优化高危婴儿呼吸暂停监护仪使用的条件；将生理标志物与威胁生命事件的发生倾向相关联；并报告睡眠状态下婴儿心脏与呼吸功能的成熟进程。 数据采集方式包括：夜间家庭监护记录（通过CHIME监护仪设备），以及一次睡眠实验室多导睡眠图（Polysomnography, PSG）检测（使用CHIME监护仪与ALICE3设备）。病例报告表（Case Report Form, CRF）数据涵盖入组时及截至婴儿1岁的按计划医疗随访、每周电话随访中收集的母婴社会人口学与医学信息，监护仪认知与满意度量表评分，定期开展的贝利婴儿发展量表第二版（Bayley II）、新生儿行为评估量表（Neonatal Behavioral Assessment Scale, NCAST）、育儿压力指数分量表评估结果，以及住院情况记录。婴儿的族裔与种族信息来源于母亲的相关数据。